Graduation Year

2009

Document Type

Dissertation

Degree

Ph.D.

Degree Granting Department

Special Education

Major Professor

Patricia Alvarez McHatton, Ph.D.

Keywords

Disability, Families, Narrative, Qualitative research, Life-course theory

Abstract

This qualitative study examines the lived experience of culturally diverse caregivers to children with ASD. The study is situated within the theoretical framework of the life-course theory. Specifically, the impact of the transition of diagnosis on the trajectory of the primary caregiver's life-course is explored. Further, coping mechanisms, caregiver burden/satisfaction, diagnosis, and other components which contribute to the larger construct of lived experience are discussed. Participant stories were obtained through the use of interactive interviewing techniques and transcripts were transformed into a cohesive narrative designed to evoke emotion within the reader while preserving the authenticity of the data. Further, the study contributes to a disability-related discourse which challenges the current deficit model and gives a voice to individuals who may have previously been marginalized based on their cultural and disability-related characterizations.

Share

COinS